“As our 13-year-old son said, the sun shines on one side of Rhee’s brain – the other side is in the shadows,” Devora said.
Devora gave up her career as a primary school teacher to focus on the 24-hour-a-day job of caring for Rhee, who requires round-the-clock supervision.
Rhee is driven by a constant desire to escape and run, and has a life-threatening eating disorder, pica – an uncontrollable compulsion to consume non-food items.
“She’s at constant risk of death from choking or being poisoned,” says Devora.
“It’s hard to visit people and take Rhee places, so home is really important.”